Understanding Patient and Caregiver Attitudes Towards Cognitive and Behavioural Screening in Amyotrophic Lateral Sclerosis

Cognitive screening in ALS requires a patient-centred approach that considers emotional readiness, individual preferences, and logistical challenges. Adaptive clinical strategies were recommended, which personalise communication, offer flexible testing delivery, and ensure results lead to meaningful, actionable outcomes. Findings support the development of remote cognitive screening tools that maintain clinician involvement while reducing testing burden. This could improve acceptance and accessibility of screening, facilitating timely support for those affected.