Incorporating perspectives of self‐advocates and families towards more accessible research of Alzheimer’s disease in Down Syndrome
Involving self-advocates and families with DS as research partners has provided ACTC-DS and ABC-DS with valuable feedback to increase the accessibility of dementia studies. This work will continue to address the health priorities of individuals with DS.
Authors
- Lauren T. Ptomey (ORCID: https://orcid.org/0000-0002-1705-1643)
- Sarah Walter (ORCID: https://orcid.org/0009-0003-3222-3102)
- Ann D Cohen
- Michael S. Rafii
- Elizabeth Head
Institutions
- University of Southern California (US)
- Autism Research Institute (US)
- University of Pittsburgh (US)
- University of California, Irvine (US)
- University of Kansas Medical Center (US)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1002/alz70859_107691
- Primary Topic
- Down syndrome and intellectual disability research
- Type
- article
- Field-Weighted Citation Impact
- 0.00