Adaptation of a Protocol for Disclosure of Amyloid PET Results for Adults with Down Syndrome and Their Caregivers

To our knowledge this is the first adaptation of an amyloid PET disclosure protocol for adults with DS and their caregivers. This adaptation emphasizes empowering the dyad, and is a first step towards achieving equity in AD diagnosis and treatment for a population of individuals with Down Syndrome. In the next phase of research, we will further refine the protocol through pilot testing with adults with DS who have undergone amyloid PET scans as part of ABC-DS.