Palliative Care Resource Utilization in Patients with Prion Disease
More than a third of patients with prion disease did not receive palliative care resources despite a high prevalence of symptoms/signs likely to benefit from palliative care. These findings highlight an opportunity to enhance the care of patients with prion disease by promoting early access to palliative care resources that may support symptom management, enhance caregiver support, and reinforce patient autonomy by clarifying goals of care and advance care planning.
Authors
- Roaa Zayat (ORCID: https://orcid.org/0009-0007-7026-2099)
- Maisha T. Robinson (ORCID: https://orcid.org/0000-0002-0776-4439)
- Yoav D. Piura (ORCID: https://orcid.org/0000-0003-1004-4560)
- Brian S. Appleby (ORCID: https://orcid.org/0000-0003-2275-3292)
- Gregory S Day
Institutions
- University Hospitals of Cleveland (US)
- Jacksonville College (US)
- Mayo Clinic in Florida (US)
- University School (US)
- Case Western Reserve University (US)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1002/alz70858_102218
- Primary Topic
- Prion Diseases and Protein Misfolding
- Type
- article
- Field-Weighted Citation Impact
- 0.00