Matters of the Heart: Co-Creating a Peer-Led Social Health Intervention for People Living with Dementia

Social health is increasingly recognized as a key domain in dementia research, yet interventions explicitly addressing it remain scarce. This study presents the co-creation of an empowering and meaningful social health intervention for people living with dementia. An evidence-based intervention scaffolding was enriched with the lived experiences of people living with dementia through a seven-step co-creation process, in which they held sole decision-making authority in selecting intervention topics using an adapted World Café method, shared responsibility for designing session content, and joint responsibility for implementation. Twenty-nine residents living with dementia in three long-term care facilities co-created and implemented twelve group sessions based on their "heart topics," emphasizing personal strengths, reciprocity, and shared experiences. Each session integrated peer-led, co-creative, and sensory elements and was collaboratively prepared and implemented together with at least one peer host. The co-creation process effectively captured the lived experiences of people living with dementia and resulted in an intervention with the potential to foster and deepen social relationships in long-term care. This study calls on researchers and practitioners to take bolder steps toward empowering people living with dementia to assume active, visible, and meaningful roles in intervention development and implementation.