Using qualitative analysis of secure messages to explore the experience of patients with dementia and their caregivers

Secure messages initiated through the patient portal provide a valuable window onto the complex social and institutional dynamics of dementia care. These messages, authored by caregivers and/or patients in real-time and in their own words, reveal difficulties experienced and strategies used to manage both the challenges of both progressive dementia and of dementia care within a complex and fragmented healthcare system. Reference 1. Han, H. R., Gleason, K. T., Sun, C. A., Miller, H. N., Kang, S. J., Chow, S., … Bauer, T. (2019). Using patient portals to improve patient outcomes: systematic review. JMIR human factors, 6(4), e15038.