Externally‐Led Patient‐Focused Drug Development Meeting (EL‐PFDD) for Dementia with Lewy Bodies—DLB: Voices of Lived Experience on Life with Lewy and Unmet Treatment Needs

The EL-PFDD on DLB provided valuable information for drug developers and regulators to understand the lived experience of people with DLB and care partners. The results will be documented in a "Voice of the Patient" report that will be hosted at www.lbda.org/el-pfdd.

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Publication Details

Journal
Alzheimer s & Dementia
Published
2025-12-01
DOI
https://doi.org/10.1002/alz70859_104394
Primary Topic
Parkinson's Disease Mechanisms and Treatments
Type
article
Field-Weighted Citation Impact
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article

Externally‐Led Patient‐Focused Drug Development Meeting (EL‐PFDD) for Dementia with Lewy Bodies—DLB: Voices of Lived Experience on Life with Lewy and Unmet Treatment Needs

Kimberly Pfleeger, Sam Fazio, Lycia Tramujas Vasconcellos Neumann, Keith N. Fargo et al.
Alzheimer s & Dementia
Parkinson's Disease Mechanisms and Treatments
article

Externally‐Led Patient‐Focused Drug Development Meeting (EL‐PFDD) for Dementia with Lewy Bodies—DLB: Voices of Lived Experience on Life with Lewy and Unmet Treatment Needs

Kimberly Pfleeger, Sam Fazio, Lycia Tramujas Vasconcellos Neumann, Keith N. Fargo, Deborah Walter, Angela Taylor, Helen Bundy Medsger, Jonathan Stokes, James Valentine, Barbara Levine, Brad F Boeve, James E. Galvin, Glorieuse Pugh, Guttmacher Laurence, Melissa J. Armstrong, Elizabeth Rachchh, Larry J. Bauer, Marwan N. Sabbagh
article en

Abstract

The EL-PFDD on DLB provided valuable information for drug developers and regulators to understand the lived experience of people with DLB and care partners. The results will be documented in a "Voice of the Patient" report that will be hosted at www.lbda.org/el-pfdd.

Alzheimer s & DementiaVol. 21(S5)
Alzheimer's Association (US), Barrow Neurological Institute (US), AARP (US), University of Miami (US), General Electric (Spain) (ES), AbbVie (United States) (US), University of Florida (US), Partners In Care (US), Mayo Clinic in Arizona (US), Pro Persona (NL), University of Rochester (US)
Openalex Percentile: Top 31%
Parkinson's Disease Mechanisms and Treatments
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Externally‐Led Patient‐Focused Drug Development Meeting (EL‐PFDD) for Dementia with Lewy Bodies—DLB: Voices of Lived Experience on Life with Lewy and Unmet Treatment Needs — Kimberly Pfleeger, Sam Fazio, et al. · Alzheimer s & Dementia (2025) | TGRS Research Map | TGRS