Assessment Tools for DS‐AD: Global Expert Perspectives on Utility and Appropriateness

Clear consensus emerged that the use of AD tools designed for the NT population has little or limited utility when diagnosing DS-AD, especially for individuals with moderate-to-severe ID, emphasizing the need for specialized DS tools. Informant-based assessments were more readily recommended across all severity levels of ID, whereas direct assessments were deemed suitable primarily for mild-to-moderate ID. Regional differences in tool awareness suggest that broader global consensus regarding use and equivalency of established instruments is needed. Therefore, bridging these knowledge gaps through an internationally agreed-upon framework clarifying which specialized DS tools to use-and for what purposes-remains critical for consistent, evidence-based assessment and care.