Family Members' Knowledge and Perspectives on Alzheimer's Disease in People with Down Syndrome

These findings highlight the need for targeted educational interventions and culturally sensitive approaches to DS-AD information delivery. The disassociation between support group participation and knowledge levels suggests support groups might fill a different role than education. The strong preference for self-learning indicates a need for developing reliable, accessible resources. The research participation rate (55%) has room for improvement through reducing participation barriers and enhancing recruitment approaches. These insights can guide the development of more effective educational strategies and research recruitment approaches for families with DS.