Developing a Tool to Assess Needs of AYA Cancer Survivors in Rural, Medically Underserved Regions of Southwestern Indiana

While cancer has sustained impacts on survivors, no unified strategy exists to assess the ongoing needs of survivors. Adolescent and young adult (AYA) cancer survivors have unique needs and concerns related to their life stages, including education, career, relationships, and family planning, all of which may be impacted by cancer and its treatments. In this study, we co-designed with survivors a distributable digital tool for assessing needs among this population. Because of known disparities in outcomes for survivors in rural or medically underserved areas, initial tool development focused on feedback from AYA survivors in one such region (Southwest Indiana).

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Publication Details

Journal
Journal of Adolescent and Young Adult Oncology
Published
2025-12-25
DOI
https://doi.org/10.1177/21565333251405138
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00
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article

Developing a Tool to Assess Needs of AYA Cancer Survivors in Rural, Medically Underserved Regions of Southwestern Indiana

Tammy J. Sajdyk, Sarah E. Wiehe, Brandon Cockrum, Kara Garcia et al.
Journal of Adolescent and Young Adult Oncology
Childhood Cancer Survivors' Quality of Life
article

Developing a Tool to Assess Needs of AYA Cancer Survivors in Rural, Medically Underserved Regions of Southwestern Indiana

Tammy J. Sajdyk, Sarah E. Wiehe, Brandon Cockrum, Kara Garcia, Bridget Hawryluk, Dustin Lynch, Joseph Sakel, Andrea Kiser, Lisa Parks, Brittany J Ritzman, Oseme Okoruwa, Courtney Moore, Ryan Heumann
article en

Abstract

While cancer has sustained impacts on survivors, no unified strategy exists to assess the ongoing needs of survivors. Adolescent and young adult (AYA) cancer survivors have unique needs and concerns related to their life stages, including education, career, relationships, and family planning, all of which may be impacted by cancer and its treatments. In this study, we co-designed with survivors a distributable digital tool for assessing needs among this population. Because of known disparities in outcomes for survivors in rural or medically underserved areas, initial tool development focused on feedback from AYA survivors in one such region (Southwest Indiana).

Journal of Adolescent and Young Adult Oncology
Purdue University West Lafayette (US), Indiana Clinical and Translational Sciences Institute (US), Indiana University School of Medicine, Indiana University – Purdue University Indianapolis (US)
Openalex Percentile: Top 18%
Childhood Cancer Survivors' Quality of Life
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Developing a Tool to Assess Needs of AYA Cancer Survivors in Rural, Medically Underserved Regions of Southwestern Indiana — Tammy J. Sajdyk, Sarah E. Wiehe, et al. · Journal of Adolescent and Young Adult Oncology (2025) | TGRS Research Map | TGRS