Time to diagnosis in FTLD clinical syndromes in Latin America: an analysis of the RedLat consortium
This study highlights substantial variability in diagnostic timelines across FTLD phenotypes in Latin America. The longest timelines were seen for bvFTD, while FTD-MND had the shortest. Younger patients and those with lower education faced greater challenges in obtaining timely diagnoses, suggesting sociodemographic disparities. These findings emphasize the need for targeted interventions, including increased clinical awareness, improved access to specialized care, and strategies to address disparities, optimizing the diagnostic process and outcomes for patients and families.
Authors
- Stefanie Danielle Piña‐Escudero (ORCID: https://orcid.org/0000-0001-7467-8365)
- David Fernando Aguillon (ORCID: https://orcid.org/0000-0003-2283-536X)
- Victor Valcour (ORCID: https://orcid.org/0000-0003-1981-4832)
- Ricardo Allegri (ORCID: https://orcid.org/0000-0001-7166-1234)
- Katherine L. Possin (ORCID: https://orcid.org/0000-0002-6623-3793)
- Carolina Agata Ardohain Cristalli
- Loana De Los Santos (ORCID: https://orcid.org/0009-0006-6071-9414)
- Elisa de Paula
- Andrea Z. Slachevsky
- França Resende
- MarÍa Isabel Behrens
- Nahuel Magrath Guimet
- José Alberto Ávila Funes
- Florentina Morello Garcia
- Leonel Tadao Takada
- Nilton Custodio
- Maria Eugenia Tabernero
- Agustin Ibanez
- Diana L Matallana
- J. Nicholas Cochran
- Jennifer S. Yokoyama
- Kenneth S. Kosik
- Bruce L. Miller
Institutions
- Consejo Nacional de Investigaciones Científicas y Técnicas (AR)
- University of California, Santa Barbara (US)
- University of California, San Francisco (US)
- Trinity College Dublin (IE)
- Adolfo Ibáñez University (CL)
- Pontificia Universidad Javeriana (CO)
- Universidad de Buenos Aires (AR)
- Universidad de Antioquia (CO)
- Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán (MX)
- Hospital del Salvador (CL)
- Fundación para la Lucha contra las Enfermedades Neurológicas de la Infancia (AR)
- University Memory and Aging Center (US)
- Faculdade de Ciências Médicas de Minas Gerais (BR)
- Instituto de Neurología Cognitiva (AR)
- Forum Solidaridad Perú (PE)
- Hospital Clínico de la Universidad de Chile (CL)
- Institute of Peruvian Studies (PE)
- Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo (BR)
- HudsonAlpha Institute for Biotechnology (US)
- Center for Climate and Resilience Research (CL)
- Hospital Universitario San Ignacio (CO)
- Global Brain Health Institute (US)
- University of Chile (CL)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1002/alz70857_106810
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00