Black American's views on trust
Participants self-identified as Black, had a mean age of 63, were predominantly female and completed some college. Our study showed that Black participants developed trust with researchers when they portrayed shared historical experiences, cultural awareness, and had previously established relationships within the community. Participants also valued diverse research teams and researchers with disease expertise. Participants desired to be heard, educated on illnesses affecting their community and informed of comprehensive study results. Data analysis revealed that trust and established relationships with the research team increased participants' willingness to participate in future studies. See Figure 1 CONCLUSION: Black participants are willing to participate in research studies, but we as researchers must first create a welcoming aura through partnerships. As we build upon more inclusive research study designs, it will be important for future studies to incorporate relationship building qualities into a standardized inclusive recruitment and retention protocol.
Authors
- Alayna Oby
- Taryn T. James (ORCID: https://orcid.org/0000-0002-6843-8653)
- Barbara L. Fischer
- Esra Alagöz (ORCID: https://orcid.org/0000-0001-7046-006X)
- Diana Gutierrez-Meza
- Susan Flowers Benton (ORCID: https://orcid.org/0000-0002-5062-2532)
- Diane C. Gooding (ORCID: https://orcid.org/0000-0002-0498-9472)
- Debra Noell
- Shenikqua Bouges (ORCID: https://orcid.org/0000-0002-4452-0548)
- Gilda E. Ennis (ORCID: https://orcid.org/0000-0003-4329-0215)
- Fauzia Hollnagel
- Nickolas H. Lambrou
- Carey E. Gleason
- Fabu P. Carter
- Carol A. Van Hulle
Institutions
- University of Wisconsin–Madison (US)
- Southern University and Agricultural and Mechanical College (US)
- Geriatric Research Education and Clinical Center (US)
- William S. Middleton Memorial Veterans Hospital (US)
- Wisconsin Division of Public Health (US)
- Memorial Hospital (US)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1002/alz70858_100415
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00