Communication of prognosis to patient with PSP and family

The prognosis of progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) involves a survival shorter than 10-years since symptom onset with development of marked disability. Patients will often progress to require increased assisstance with daily living activities, and symptomatic therapies with partial effectiveness that lead to experiencing decreased quality of life. Speech difficulties and swallowing problems dictate the moderate to severe stages of the disease course adding complexity to the daily care of patients with PSP and CBS. Altogether, these create a huge burden that impacts directly to the patient family and caregivers. Communicating prognosis at each timepoint of the disease is crucial for care planning and making future life decisions. In this session, we will provide clinicians with information and skills to communicate prognosis of tauopathies with an accertive and patient-centered approach.