Factors impacting caregiver burden for familial caregivers in Puerto Rico: Perspectives from 51 caregivers of people living with Alzheimer's Disease
The findings reveal the extreme burden on familial caregivers of AD patients in PR, highlighting the need for enhanced support from social networks and healthcare providers. Policies should focus on integrating caregiver wellbeing into patient care, enhancing respite support, improving healthcare access and coordination, and providing training programs for practical caregiving skills and emotional support. A family-centered care approach that addresses both patient and caregiver needs is essential for improving the overall well-being of those involved in AD care.
Authors
- Jesus Santiago
- Beverly A. Weidmer (ORCID: https://orcid.org/0000-0002-0376-9777)
- Gilberto Ramos Valencia
- Justin W. Timbie (ORCID: https://orcid.org/0000-0002-9955-5270)
- Gabriela Castro (ORCID: https://orcid.org/0000-0003-2521-1923)
- Marielena Lara
- Alexandra Mendoza‐Graf
- Ilka Rios
- Mariela Torres‐Cintrón
- Ivonne Z. Jimenez Velazquez
Institutions
- RAND Corporation (US)
- University of Puerto Rico System (PR)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1002/alz70858_103595
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00