Cure MAPT FTD: MAPT Families Fighting for a Future

We are aware of the burden of this disease on patients and families and the lack of resources to efficiently diagnose and treat FTD. We are working collaboratively with other genetic FTD organizations and institutions to further reach MAPT families in an international effort to provide support for MAPT families and gene carriers, identify areas for advocacy, promote research, and to contribute to future therapeutics. Fueled by the past trauma of watching loved ones succumb to FTD, terrified of how FTD will dictate the future, and fighting for those whose minds are currently failing them.

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Publication Details

Journal
Alzheimer s & Dementia
Published
2025-12-01
DOI
https://doi.org/10.1002/alz70855_105635
Primary Topic
Amyotrophic Lateral Sclerosis Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Cure MAPT FTD: MAPT Families Fighting for a Future

Linde Jacobs
Alzheimer s & Dementia
Amyotrophic Lateral Sclerosis Research
article

Cure MAPT FTD: MAPT Families Fighting for a Future

Linde Jacobs
article en

Abstract

We are aware of the burden of this disease on patients and families and the lack of resources to efficiently diagnose and treat FTD. We are working collaboratively with other genetic FTD organizations and institutions to further reach MAPT families in an international effort to provide support for MAPT families and gene carriers, identify areas for advocacy, promote research, and to contribute to future therapeutics. Fueled by the past trauma of watching loved ones succumb to FTD, terrified of how FTD will dictate the future, and fighting for those whose minds are currently failing them.

Alzheimer s & DementiaVol. 21(S1)
CURE International UK (GB)
Openalex Percentile: Top 31%
Amyotrophic Lateral Sclerosis Research
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Cure MAPT FTD: MAPT Families Fighting for a Future — Linde Jacobs · Alzheimer s & Dementia (2025) | TGRS Research Map | TGRS