Barriers to clinical cancer research participation: moving from inclusion to engagement when considering European migrants’ recruitment
Many migrant participants were unfamiliar with UK-based research practices, and it was suggested that fatalist attitudes towards a cancer diagnosis and mistrust of research generally created apprehension and defensiveness when hearing about clinical cancer research in migrant communities. Migrant individuals and staff endorsed research design strategies which engage community champions (including clinicians); narrate positive stories of cancer research participation; and consider language accessibility and comprehension as key elements of engagement-focused research design.
Authors
- Nessa Millet (ORCID: https://orcid.org/0000-0001-5468-5197)
- G-I. Postavaru
- Natalie Darko (ORCID: https://orcid.org/0000-0002-6384-9269)
- Barbara Czyznikowska (ORCID: https://orcid.org/0000-0001-9253-607X)
- I. Silina
- E. L. Moss
- M. Brzeska
Institutions
- University of Leicester (GB)
- Leicester College (GB)
- University Hospitals of Leicester NHS Trust (GB)
- Amsterdam University Medical Centers (NL)
Publication Details
- Journal
- Trials
- Published
- 2025-12-23
- DOI
- https://doi.org/10.1186/s13063-025-09293-9
- Citations
- 1
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 1.88
Funders
- National Institute for Health and Care Research
- Department of Health and Social Care
- NIHR Leicester Biomedical Research Centre