Evaluating the Feasibility of a Personalized Endpoint in Down Syndrome‐associated Alzheimer’s Disease: Inventory‐facilitated Goal Attainment Scaling
Our findings indicate GAS is feasible and acceptable to caregivers, and the DS-AD goal inventory comprehensively reflects patient priorities. Additional gaps identified led to inventory enhancements, resulting in a more comprehensive resource to standardize GAS implementation in DS-AD studies.
Authors
- Hampus Hillerstrom
- Güneş Sevinç
- Chere Chapman (ORCID: https://orcid.org/0000-0003-2577-390X)
- K. Rockwood
- James A. Hendrix (ORCID: https://orcid.org/0000-0002-3752-0857)
- Lois Kelly
- Michelle George
- Katie Crespo
Institutions
- Dalhousie University (CA)
- Eli Lilly (United States) (US)
- Nova Scotia Health Authority (CA)
- Foundation Fighting Blindness (US)
- Health Outcomes Solutions (United States) (US)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1002/alz70861_108133
- Primary Topic
- Down syndrome and intellectual disability research
- Type
- article
- Field-Weighted Citation Impact
- 0.00