Towards a Dutch nationwide registry for Alzheimer's disease and other dementia's: rationale, design, and initial observations of the ABOARD Cohort

The ABOARD Cohort has been set up as a national infrastructure to study AD disease trajectories, linking data-sources, with the participant at the steering wheel. This infrastructure has the potential to serve as a future registry to advance AD research on a national level, and provide Real World Data to evaluate novel interventions and therapies.

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Publication Details

Journal
Alzheimer s & Dementia
Published
2025-12-01
DOI
https://doi.org/10.1002/alz70860_098974
Primary Topic
Dementia and Cognitive Impairment Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Towards a Dutch nationwide registry for Alzheimer's disease and other dementia's: rationale, design, and initial observations of the ABOARD Cohort

Derk L. Arts, Marco Blom, Tanja J. de Rijke, Harro Seelaar et al.
Alzheimer s & Dementia
Dementia and Cognitive Impairment Research
article

Towards a Dutch nationwide registry for Alzheimer's disease and other dementia's: rationale, design, and initial observations of the ABOARD Cohort

Derk L. Arts, Marco Blom, Tanja J. de Rijke, Harro Seelaar, Marjolein Elizabeth de Vugt, Miriam Beusink, Casper de Boer, Marissa D. Zwan, Everard G.B. Vijverberg, Robbert Huijsman, Jurgen A.H.R. Claassen, Marleen Kloppenburg‐Lagendijk, Barbara C. van Munster, Henk Mutsaerts, Sophie M. van der Landen, Sven J van der Lee, Janne M. Papma, Hanneke F.M. Rhodius‐ Meester, Wiesje M. van der Flier, Argonde C. van Harten, Evert‐Ben van Veen
article en

Abstract

The ABOARD Cohort has been set up as a national infrastructure to study AD disease trajectories, linking data-sources, with the participant at the steering wheel. This infrastructure has the potential to serve as a future registry to advance AD research on a national level, and provide Real World Data to evaluate novel interventions and therapies.

Alzheimer s & DementiaVol. 21(S6)
Oslo University Hospital (NO), University Medical Center Groningen (NL), Radboud University Nijmegen (NL), University of Groningen (NL), Erasmus MC (NL), Medisch Centrum Leeuwarden (NL), Radboud University Medical Center (NL), Maastricht University (NL), Amsterdam Neuroscience (NL), Radboud Institute for Molecular Life Sciences (NL), Alzheimer Nederland (NL), Texas Instruments (Netherlands) (NL), DDL Diagnostic Laboratory (NL), Exor (Netherlands) (NL), Amsterdam University Medical Centers (NL), Vrije Universiteit Amsterdam (NL), University of Amsterdam (NL), Erasmus University Rotterdam (NL)
Industry, innovation and infrastructure
Openalex Percentile: Top 35%
Dementia and Cognitive Impairment Research
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