Diagnosis of Frontotemporal Dementia is Often in Non‐Specialist Settings and Complicated by Non‐FTD Dementia and Psychiatric Diagnoses: Patient and Provider Findings from Analysis of a Large US Real‐World Dataset

The lack of specialist consultation, limited brain imaging, and high prevalence of concurrent diagnoses of non-FTD dementias suggests challenges in accurate FTD diagnosis. Further, the high prevalence of psychiatric disorders in absence of MH consultation was unexpected. Patients with FTD seem to be identified in the community by primary care clinicians, suggesting that future policy and educational efforts may need to focus on supporting appropriate referrals in parallel to patient/public/provider disease-awareness initiatives.