Rediscovering the simple yet profound joy of breathing without pain: My experience with childhood tuberculosis
In this personal essay, I recount my lived experience of childhood tuberculosis, highlighting the physical, emotional, and psychological toll on myself and my family. I reflect on how tuberculosis care has since improved, but also how certain critical gaps persist, especially the challenges of inadequate financial support, post-recovery social reintegration, and insufficient psychological care for persons with tuberculosis. Drawing from my experience, I advocate measures to address stigma, invisible costs, and discrimination. Holistic care for tuberculosis must go beyond just medical recovery and ensure dignity and meaningful social healing for all.
Authors
- Charan Mahananda
Institutions
- Institute of Public Health Bengaluru (IN)
Publication Details
- Journal
- Indian Journal of Medical Ethics
- Published
- 2025-12-19
- DOI
- https://doi.org/10.20529/ijme.2025.096
- Primary Topic
- Tuberculosis Research and Epidemiology
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Wellcome Trust
- Department of Biotechnology, Ministry of Science and Technology, India
- The Wellcome Trust DBT India Alliance