Rediscovering the simple yet profound joy of breathing without pain: My experience with childhood tuberculosis

In this personal essay, I recount my lived experience of childhood tuberculosis, highlighting the physical, emotional, and psychological toll on myself and my family. I reflect on how tuberculosis care has since improved, but also how certain critical gaps persist, especially the challenges of inadequate financial support, post-recovery social reintegration, and insufficient psychological care for persons with tuberculosis. Drawing from my experience, I advocate measures to address stigma, invisible costs, and discrimination. Holistic care for tuberculosis must go beyond just medical recovery and ensure dignity and meaningful social healing for all.

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Publication Details

Journal
Indian Journal of Medical Ethics
Published
2025-12-19
DOI
https://doi.org/10.20529/ijme.2025.096
Primary Topic
Tuberculosis Research and Epidemiology
Type
article
Field-Weighted Citation Impact
0.00

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article

Rediscovering the simple yet profound joy of breathing without pain: My experience with childhood tuberculosis

Charan Mahananda
Indian Journal of Medical Ethics
Tuberculosis Research and Epidemiology
article

Rediscovering the simple yet profound joy of breathing without pain: My experience with childhood tuberculosis

Charan Mahananda
article en

Abstract

In this personal essay, I recount my lived experience of childhood tuberculosis, highlighting the physical, emotional, and psychological toll on myself and my family. I reflect on how tuberculosis care has since improved, but also how certain critical gaps persist, especially the challenges of inadequate financial support, post-recovery social reintegration, and insufficient psychological care for persons with tuberculosis. Drawing from my experience, I advocate measures to address stigma, invisible costs, and discrimination. Holistic care for tuberculosis must go beyond just medical recovery and ensure dignity and meaningful social healing for all.

Indian Journal of Medical Ethics
Institute of Public Health Bengaluru (IN)
Wellcome Trust, Department of Biotechnology, Ministry of Science and Technology, India, The Wellcome Trust DBT India Alliance
Reduced inequalities
Openalex Percentile: Top 31%
Tuberculosis Research and Epidemiology
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