Healthcare Utilization and Communication Patterns Among Survivors of Adolescent and Young Adult Cancer: Results From the Health Information National Trends Survey

National studies examining how survivors of adolescent and young adult (AYA) cancer communicate and engage with healthcare are limited. Using Health Information National Trends Survey data, we evaluated healthcare utilization and patient-centered communication (PCC) among 708 survivors of AYA cancer. Survivors less than 40 years (25%) had greater than 10 healthcare visits compared to older groups (41-60 years: 14%, >60 years: 13%, p < 0.01). Hispanic/Latinx (H/L) reported lower PCC (mean = 68, SD = 24) than non-Hispanic White (NHW) (mean = 75, SD = 22) and non-Hispanic Black (NHB) (mean = 81, SD = 23). NHB (10%) and H/L (7%) reported more unfair treatment/discrimination than NHW (<1%) (p < 0.01). Equitable communication interventions may enhance AYA survivorship care.

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Publication Details

Journal
Pediatric Blood & Cancer
Published
2025-12-22
DOI
https://doi.org/10.1002/1545-5017.70048
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00

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article

Healthcare Utilization and Communication Patterns Among Survivors of Adolescent and Young Adult Cancer: Results From the Health Information National Trends Survey

Melissa Beauchemin, Han‐Wei Wu, Ghislaine Jumonville, Laura C. Pinheiro et al.
Pediatric Blood & Cancer
Childhood Cancer Survivors' Quality of Life
article

Healthcare Utilization and Communication Patterns Among Survivors of Adolescent and Young Adult Cancer: Results From the Health Information National Trends Survey

Melissa Beauchemin, Han‐Wei Wu, Ghislaine Jumonville, Laura C. Pinheiro, Michael E. Roth
article en

Abstract

National studies examining how survivors of adolescent and young adult (AYA) cancer communicate and engage with healthcare are limited. Using Health Information National Trends Survey data, we evaluated healthcare utilization and patient-centered communication (PCC) among 708 survivors of AYA cancer. Survivors less than 40 years (25%) had greater than 10 healthcare visits compared to older groups (41-60 years: 14%, >60 years: 13%, p < 0.01). Hispanic/Latinx (H/L) reported lower PCC (mean = 68, SD = 24) than non-Hispanic White (NHW) (mean = 75, SD = 22) and non-Hispanic Black (NHB) (mean = 81, SD = 23). NHB (10%) and H/L (7%) reported more unfair treatment/discrimination than NHW (<1%) (p < 0.01). Equitable communication interventions may enhance AYA survivorship care.

Pediatric Blood & CancerVol. 73(2)
Memorial Sloan Kettering Cancer Center (US), The University of Texas MD Anderson Cancer Center (US), Cornell University (US), Weill Cornell Medicine (US), Columbia University (US)
National Institutes of Health, Weill Cornell Medical College, National Cancer Institute
Reduced inequalities
Openalex Percentile: Top 18%
Childhood Cancer Survivors' Quality of Life
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