Approaches to Identify People With Haemophilia With Medicare Claims Data
In this study, we compared three methods to identify PwHA in claims. Generic diagnosis coding may overcount those tested for haemophilia but ultimately not diagnosed, whereas historical algorithms and treatment-based selection may underrepresent those with non-severe haemophilia, including females. Contemporary validated algorithms are needed to improve the utility of claims for haemophilia research.
Authors
- Tyler W. Buckner (ORCID: https://orcid.org/0000-0003-1954-4385)
- L Cafuir
- Christine L. Kempton (ORCID: https://orcid.org/0000-0002-2391-2016)
- Robert F. Sidonio (ORCID: https://orcid.org/0000-0002-9509-9415)
- Stacey A. Fedewa (ORCID: https://orcid.org/0000-0002-3624-6382)
- Ming Y Lim
Institutions
- Emory University (US)
- University of Utah (US)
Publication Details
- Journal
- Haemophilia
- Published
- 2025-12-22
- DOI
- https://doi.org/10.1111/hae.70184
- Primary Topic
- Hemophilia Treatment and Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00