Patient Reported Experience Measures (PREMs) in pediatrics: a scoping review

Introduction: <br/>The WFOT is concerned with quality performance within the profession, prompting the development of the Quality Evaluation Strategy Tool [QUEST], with patient experience as an integral component. Paediatric services globally are increasingly acknowledging the importance of delivering patient-centred care for improvement in all quality dimensions. Patient Reported Experience Measures [PREMs] capture experiences with care received and should recognize the subjective nature of experience from both child and carer perspectives. Currently no PREMs have been identified for global use within pediatric occupational therapy. <br/><br/>Objective: <br/>To identify different PREMs used with pediatric patients, analyse characteristics, and synthesize findings relevant to occupational therapy, supporting the use of QUEST. <br/><br/>Methods: <br/>A systematic search of Medline, Embase, Cochrane, CINAHL, and PsychInfo was conducted, from inception to June 2024, following PRISMA-ScR guidelines. Articles were screened by two independent reviewers. Extracted data will be synthesized inductively, tabulating PREMs by geography, type, domains, and characteristics. <br/><br/>Results: <br/>The initial search identified 19, 907 articles after removing duplicates. To date 11844 have been screened, with 218 awaiting full-text review. Final results are expected in December 2024. <br/><br/>Conclusions: <br/>Preliminary results identified a broad range of existing PREMs across diverse practice settings and geographic locations. Despite occupational therapy’s characteristic priority for holistic and patient-centred care, limited field specific literature was identified. The significant heterogeneity in terminology complicated study selection and highlighted a need to streamline definitive terminology to ensure accuracy in future research and consistency in practice. Findings are relevant to inform care improvement and aid selection and operational use of PREMs.