Peer support service provided through online and face-to-face support groups after subarachnoid haemorrhage: a service evaluation

Background: Subarachnoid haemorrhage is a severe neurological event. Peer support has been shown to benefit individuals with long-term neurological conditions, yet structured support is not routinely provided. Aims: To evaluate the experiences of patients and carers participating in a hospital-based peer support group offering online and face-to-face meetings, and to explore its perceived impact. Methods: A service evaluation was conducted using a mixed-methods online questionnaire comprising 13 quantitative and 11 qualitative items. Descriptive statistics were used to analyse quantitative data and thematic analysis was applied to free-text responses. All members of the hospital sub-arachnoid haemorrhage support group (n=120) were invited; 35 (29.17%) valid responses were received. Results: Long-term post-subarachnoid haemorrhage problems were reported by 94% of respondents, with fatigue, anxiety and cognitive changes most prevalent. Key benefits reported included peer support (69%), shared experience (63%) and meeting others who understand their condition (86%). Many participants (57%) felt the group supported their recovery, and 46–48% reported benefits for family members' understanding of their condition and recovery journey. Overall, 86% rated their experience positively and 100% would recommend the group. Conclusions: Peer support groups provide meaningful benefits for survivors and their families, offering emotional support, improved understanding of ongoing symptoms and enhanced coping strategies. Implications for practice: Findings support integrating peer support into rehabilitation pathways and highlight the need for broader access.