Navigating the burden of caregiving: Transition journey of Black Canadian parents with preterm infants from NICU to home

Transition from NICU to home is a critical period as many parents begin to take primary responsibility of caring for their preterm infant. But this period of transition impacted by the demands and stress of caring for a fragile infant, is often complicated by limited access to support and resources. These stressors impact parents’ mental wellbeing and responsiveness to infant needs. This study aimed to shed light on the unique journey of Black Canadian parents of preterm infants transitioning from NICU to home. An exploratory qualitative design underpinned by principles of meaningful community engagement was used to explore the experiences of 40 Black Canadian parents of preterm infants. Focus group and interviews were conducted, and data were analyzed using thematic analysis. The findings illuminated the transition journey of Black parents from NICU was shaped by physical, emotional, financial strain and mental health burden of caregiving in the face of inadequate follow-up care and support. This study underscores the need for developing targeted programs and services to support and promote the wellbeing of Black Canadian parents after they transition home .