Supportive Cancer Care: Haematology and Brain Cancer Patients’ Experiences of Formal and Informal Support

This thesis portfolio comprises three parts: a systematic literature review, an empirical paper, and appendices. This thesis aims to explore hematology and brain cancer patients’ experiences of formal and informal support.Part One: Systematic Literature ReviewThe systematic review explores psychosocial factors that affect how patient-informal caregiver dyads live with haematological cancer. Eight qualitative and thirteen quantitative studies met the inclusion criteria following a systematic search of the literature. The Joanna Briggs Institute (JBI) convergent-integrated approach to mixed-methods evidence synthesis (MMRS) was used to synthesise data and structure results. The Mixed-Methods Appraisal Tool (MMAT) was used to assess the quality of included studies. Results highlight seven interconnected psychosocial factors that influence how dyads live with haematological cancer. Findings suggest further research and a review of clinical policy to include interventions for dyads living with HM.Part Two: Empirical PaperThe empirical paper examined the lived experiences of six high-grade glioma patients who receive support from specialist nurses via telemedicine. A qualitative Interpretative Phenomenological Analysis (IPA) methodology was used. Four themes were developed from semi-structured interviews: (1) Uncertainty and loss of control: changes to a sense of ‘normal’, (2) Relationships with support: CNS’ and wider supportive structures, (3) Striking the balance of CNS support: flexibility of telemedicine and depth of face to face, and (4) Leaving a legacy: telling their story and expressing gratitude. This study emphasises the importance of being supported through the uncertainty of a HGG by a trusted medical professional and that telemedicine and in-person support should be used flexibly. Recommendations for further research are presented, along with the implications for clinical practice.Part Three comprises the AppendicesThe appendices supplement the information presented in the systematic literature review and empirical paper. The role and position of the researcher is explored in the epistemological and reflective statements.