Cystic Fibrosis Registry of Ireland Annual Report 2024

The annual report of the Cystic Fibrosis Registry of Ireland (CFRI) provides a comprehensive overview of the health status, clinical outcomes, and demographic characteristics of people living with Cystic Fibrosis in Ireland. It summarises key data on prevalence, treatment patterns, and long-term trends; helping to monitor disease progression and the impact of therapies. The report also highlights improvements and ongoing challenges in patient care, supports healthcare planning, and serves as a valuable resource for clinicians, researchers, policymakers, and patient advocacy groups working to improve quality of life and outcomes for individuals with Cystic Fibrosis.

Institutions

Publication Details

Journal
Zenodo (CERN European Organization for Nuclear Research)
Published
2025-11-25
DOI
https://doi.org/10.5281/zenodo.17714781
Primary Topic
Cystic Fibrosis Research Advances
Type
article
Field-Weighted Citation Impact
0.00
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article

Cystic Fibrosis Registry of Ireland Annual Report 2024

Zenodo (CERN European Organization for Nuclear Research)
Cystic Fibrosis Research Advances
article

Cystic Fibrosis Registry of Ireland Annual Report 2024

article en

Abstract

The annual report of the Cystic Fibrosis Registry of Ireland (CFRI) provides a comprehensive overview of the health status, clinical outcomes, and demographic characteristics of people living with Cystic Fibrosis in Ireland. It summarises key data on prevalence, treatment patterns, and long-term trends; helping to monitor disease progression and the impact of therapies. The report also highlights improvements and ongoing challenges in patient care, supports healthcare planning, and serves as a valuable resource for clinicians, researchers, policymakers, and patient advocacy groups working to improve quality of life and outcomes for individuals with Cystic Fibrosis.

Zenodo (CERN European Organization for Nuclear Research)
University College Dublin (IE), Cork University Hospital (IE), University Hospital Limerick (IE), Children's Health Ireland at Crumlin (IE), St. Vincent's University Hospital (IE), Cystic Fibrosis Ireland (IE)
Partnerships for the goals
Openalex Percentile: Top 32%
Cystic Fibrosis Research Advances
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