Helping people with brain injuries find their way through health and social services in Switzerland

Abstract Background Acquired brain injury (ABI) poses a significant burden on healthcare systems and society, with high acute and long-term costs. Integrated care-encompassing medical, rehabilitative, and vocational services-can support recovery and sustainable reintegration. In Switzerland, however, services remain fragmented and poorly coordinated, with efforts focused mainly on healthcare, often neglecting the vocational and social aspects funded by social security. People with ABI and their families frequently feel overwhelmed navigating this complex system. Poor coordination among institutions delays interventions, increases chronicity, and hinders integration. Objectives To develop user-centered recommendations to support individuals with ABI and their families in navigating the Swiss health and social security systems. Methods An Integrated Knowledge Translation (IKT) approach was used, involving a project team that included a person with ABI, professionals, and representatives from disability insurance and an employers’ association. Focus groups with persons with ABI, professionals, and employers, and surveys with rehabilitation centers and social security offices, identified key challenges and solutions. An expert panel refined the recommendations, which were finalized through a Delphi survey with persons with ABI and family members. Results Between July 2023 and May 2025, ten recommendation areas were identified, including diagnosis, prognosis, care transitions, insurance, rehabilitation, and vocational reintegration. Each area includes background information, practical guidance, and relevant contact points. Conclusions The IKT approach enabled the co-creation of targeted recommendations that reflect the needs of individuals with ABI. The final resource offers structured, accessible guidance to individuals with ABI to navigate complex service systems, reduce delays, and support sustainable integration. Key messages • Using an IKT approach, stakeholder-informed recommendations were co-developed to improve service navigation. • The final set of recommendations supports timely access to coordinated services, promoting sustainable recovery and societal reintegration for people with ABI.