1.K. Scientific session: Quality registers of severe mental disorders in Nordic countries

Abstract Severe mental disorders (SMD) - psychotic and bipolar disorders - are common disorders with a 3-4 % lifetime morbid risk. For effective treatment, pharmacological, psychological, social, occupational and educational interventions are required. Most patients require ongoing treatment for years, or even for their entire lifetime, and some need supported housing and hospital treatment during acute episodes. SMDs are also associated with increased risk of physical health problems, which require prevention, monitoring and treatment. RCT studies have shown that high-quality services are cost-effective, but the quality of care and patient outcomes in real-world settings remains uncertain. Furthermore, while symptomatic remission is achieved fairly often, there is much room for improvement in social and occupational outcomes. For this purpose, Nordic countries have established quality registers. All Nordic countries have nationwide health-care registers, and there is a long tradition of collaboration in register-based research. Collaboration between Nordic quality registers would benefit health care, patients and research, as there are differences in both the organization and the resourcing of services for SMDs both between and within countries. In this workshop, quality registers for SMDs in four Nordic countries, Denmark, Finland, Norway, and Sweden, are presented. They have been in operation for varying lengths of time: the quality register in Denmark has existed for over 20 years, while the quality register in Norway is set to launch in 2026. Their diagnostic scope varies as well. Some focus on the quality of care in specialist psychiatric services, while others cover primary care and social services as well. Despite variability, all registers include also common indicators where Nordic comparisons and collaboration would be possible. Norway's NAMHR is based on a transdiagnostic, clinical staging approach, and may provide new insights to the traditional quality registers of SMDs. The workshop consists of short opening remarks from the chair, four presentations from each quality register and a panel discussion on enhancing Nordic collaboration in developing quality registers of SMDs and in quality register-based research. Themes of discussion include sustainability, choosing and using PROM data, enhancing data quality, improving indicators and monitoring as well as research opportunities. Key messages • Enhancing collaboration between Nordic quality registers would benefit the development of mental health care systems as well as patients and research. • We will discuss about sharing best practices, enhancing data quality, choosing and using PROM data, developing and improving indicators and monitoring, and opportunities for comparative research.

Publication Details

Journal
European Journal of Public Health
Published
2025-10-01
DOI
https://doi.org/10.1093/eurpub/ckaf161.052
Primary Topic
Schizophrenia research and treatment
Type
article
Field-Weighted Citation Impact
0.00
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article

1.K. Scientific session: Quality registers of severe mental disorders in Nordic countries

European Journal of Public Health
Schizophrenia research and treatment
article

1.K. Scientific session: Quality registers of severe mental disorders in Nordic countries

article en

Abstract

Abstract Severe mental disorders (SMD) - psychotic and bipolar disorders - are common disorders with a 3-4 % lifetime morbid risk. For effective treatment, pharmacological, psychological, social, occupational and educational interventions are required. Most patients require ongoing treatment for years, or even for their entire lifetime, and some need supported housing and hospital treatment during acute episodes. SMDs are also associated with increased risk of physical health problems, which require prevention, monitoring and treatment. RCT studies have shown that high-quality services are cost-effective, but the quality of care and patient outcomes in real-world settings remains uncertain. Furthermore, while symptomatic remission is achieved fairly often, there is much room for improvement in social and occupational outcomes. For this purpose, Nordic countries have established quality registers. All Nordic countries have nationwide health-care registers, and there is a long tradition of collaboration in register-based research. Collaboration between Nordic quality registers would benefit health care, patients and research, as there are differences in both the organization and the resourcing of services for SMDs both between and within countries. In this workshop, quality registers for SMDs in four Nordic countries, Denmark, Finland, Norway, and Sweden, are presented. They have been in operation for varying lengths of time: the quality register in Denmark has existed for over 20 years, while the quality register in Norway is set to launch in 2026. Their diagnostic scope varies as well. Some focus on the quality of care in specialist psychiatric services, while others cover primary care and social services as well. Despite variability, all registers include also common indicators where Nordic comparisons and collaboration would be possible. Norway's NAMHR is based on a transdiagnostic, clinical staging approach, and may provide new insights to the traditional quality registers of SMDs. The workshop consists of short opening remarks from the chair, four presentations from each quality register and a panel discussion on enhancing Nordic collaboration in developing quality registers of SMDs and in quality register-based research. Themes of discussion include sustainability, choosing and using PROM data, enhancing data quality, improving indicators and monitoring as well as research opportunities. Key messages • Enhancing collaboration between Nordic quality registers would benefit the development of mental health care systems as well as patients and research. • We will discuss about sharing best practices, enhancing data quality, choosing and using PROM data, developing and improving indicators and monitoring, and opportunities for comparative research.

European Journal of Public HealthVol. 35(Supplement_4)
Industry, innovation and infrastructure
Openalex Percentile: Top 44%
Schizophrenia research and treatment
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