General Practitioner care of Residential Aged Care Facility residents at End of Life: a systematic literature review and narrative synthesis

ABSTRACT Objectives. In 2023, 21% of deaths occurred in Residential Aged Care Facilities (RACFs), a setting expected to play an increasing role in Palliative and End-of-Life Care (PEoLC). General Practitioners (GPs) oversee and deliver PEoLC in residential and nursing homes, yet little is known about their practice. We conducted a systematic review of the published evidence concerning how GPs provide this care: what they do and the quality, challenges and facilitators of that care. Design. Systematic Review and narrative synthesis using the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) Data Sources Medline, Embase, CINAHL, PsycINFO, Web of Science, Scopus and NHS Evidence and grey literature via Google Scholar were searched through 9th October 2024. Eligibility Criteria We included studies presenting new empirical data from qualitative, quantitative or mixed methods, were published in the English language and conducted in the UK, European Union, Australia, New Zealand and Canada, We excluded studies with no new empirical data, discussion papers, conference abstracts, opinion pieces, study participants under 18 years old and in care settings other than RACF. Data Extraction and Synthesis One independent reviewer used standardised methods to search and screen study titles for inclusion. This reviewer assessed all abstracts of the included papers, a second independent reviewer screened 60% of the abstracts to validate inclusion. Risk of bias was assessed using Gough’s Weight of Evidence assessment. Thematic analysis was used to describe the contents of the included papers; a narrative synthesis approach was taken to report the findings at a more conceptual level. Results The search identified 5,936 titles: 35 papers were eligible and included in the synthesis. This is a nascent evidence base, lacking robust research designs and characterised by small sample sizes; the results describe the factors observed to be important in the delivery of care. Care provision is extremely variable; no models of optimal care have been put forward or tested. Challenges to care provision occur at every level of the care system. At macro level, service level agreements and policies vary: at meso level, team-working, communication technology solutions, and equipment availability vary: at micro level GPs interest in providing PEoLC vary as does their training. No study addresses residents’ and relatives’ experiences and expectations of GPs involvement in PEoLC in RACFs. Conclusions The limited evidence base highlights that GP care at end of life for RACF residents varies greatly, with enablers and challenges at all levels in the existing care systems. Little research has examined GP PEoLC for RACF residents in its own right; insight is derived from studies that report on this issue as an adjunct to the main focus. With national policies focussed on moving more PEoLC into community settings, these knowledge deficits require urgent attention.