Mapping Global Parkinson's Disease Data: Toward the Development of the PARKINSON BRASIL National Database

Parkinson’s disease (PD) represents a growing global public health challenge, exacerbated by the lack of structured and accessible data in Brazil. This study conducted a descriptive and exploratory analysis of 55 publicly or partially accessible PD-related datasets, aiming to map their key characteristics, data modalities, geographic distribution, and access conditions. Movement signals, clinical data and biomarkers were the most prevalent types, reflecting advances in monitoring technologies and the ongoing relevance of traditional assessments. Most datasets originate from developed countries, highlighting disparities in access to information and scientific output. The PARKINSON BRASIL project emerges as a strategic initiative to address national data gaps by developing a comprehensive, open-access database tailored to the Brazilian context. The findings underscore the potential of multimodal approaches and machine learning in PD research, while reinforcing the importance of data transparency and sharing to support progress in precision medicine.

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Publication Details

Journal
Zenodo (CERN European Organization for Nuclear Research)
Published
2025-10-17
DOI
https://doi.org/10.5281/zenodo.17373757
Primary Topic
Parkinson's Disease Mechanisms and Treatments
Type
article
Field-Weighted Citation Impact
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article

Mapping Global Parkinson's Disease Data: Toward the Development of the PARKINSON BRASIL National Database

Zenodo (CERN European Organization for Nuclear Research)
Parkinson's Disease Mechanisms and Treatments
article

Mapping Global Parkinson's Disease Data: Toward the Development of the PARKINSON BRASIL National Database

article en

Abstract

Parkinson’s disease (PD) represents a growing global public health challenge, exacerbated by the lack of structured and accessible data in Brazil. This study conducted a descriptive and exploratory analysis of 55 publicly or partially accessible PD-related datasets, aiming to map their key characteristics, data modalities, geographic distribution, and access conditions. Movement signals, clinical data and biomarkers were the most prevalent types, reflecting advances in monitoring technologies and the ongoing relevance of traditional assessments. Most datasets originate from developed countries, highlighting disparities in access to information and scientific output. The PARKINSON BRASIL project emerges as a strategic initiative to address national data gaps by developing a comprehensive, open-access database tailored to the Brazilian context. The findings underscore the potential of multimodal approaches and machine learning in PD research, while reinforcing the importance of data transparency and sharing to support progress in precision medicine.

Zenodo (CERN European Organization for Nuclear Research)
Universidade Federal de Uberlândia (BR)
Partnerships for the goals
Openalex Percentile: Top 37%
Parkinson's Disease Mechanisms and Treatments
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Mapping Global Parkinson's Disease Data: Toward the Development of the PARKINSON BRASIL National Database · Zenodo (CERN European Organization for Nuclear Research) (2025) | TGRS Research Map | TGRS