D2.6 - First report on stakeholder engagement focused on patient-centered and patient-informed ethical guidance

This report provides a targeted literature review of patient involvement practices and patient involvement evaluation practices focused on the field of AYA cancer research. The report ends with recommendations for improving evaluation frameworks for patient involvement in the context of research projects such as STRONG AYA.

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Publication Details

Journal
Zenodo (CERN European Organization for Nuclear Research)
Published
2024-10-24
DOI
https://doi.org/10.5281/zenodo.17234806
Primary Topic
Economic, financial, and policy analysis
Type
article
Field-Weighted Citation Impact
0.00
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article

D2.6 - First report on stakeholder engagement focused on patient-centered and patient-informed ethical guidance

Zenodo (CERN European Organization for Nuclear Research)
Economic, financial, and policy analysis
article

D2.6 - First report on stakeholder engagement focused on patient-centered and patient-informed ethical guidance

article en

Abstract

This report provides a targeted literature review of patient involvement practices and patient involvement evaluation practices focused on the field of AYA cancer research. The report ends with recommendations for improving evaluation frameworks for patient involvement in the context of research projects such as STRONG AYA.

Zenodo (CERN European Organization for Nuclear Research)
University of Leeds (GB), European CanCer Organisation (BE), Maastricht University (NL), Youth Development (US)
Partnerships for the goals
Openalex Percentile: Top 33%
Economic, financial, and policy analysis
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