MORE THAN MEETS THE EYE: A PHENOMENOLOGICAL STUDY OF SELF-CONCEPT, IDENTITY, AND MEANING-MAKING IN ADULTS WITH ACQUIRED VISION LOSS

The qualitative research project examines the lived experience of acquired vision loss in adulthood and its impact on the way participants see themselves and the world around them, both sensorially and metaphorically. The research question, “What are the lived experiences of adults with acquired vision loss as they relate to identity and conceptions of self?” is informed by the researcher’s clinical practice as a psychotherapist in a low vision clinic. The dissertation includes a literature review focussed on the psychosocial aspects of vision loss to provide insight into the intended population and context for the study. Data for the phenomenological research study is from semi-structured interviews with ten adults with acquired visual impairments engaged in low vision rehabilitation at an interdisciplinary optometric clinic in Ontario, Canada. Data analysis using Interpretative Phenomenological Analysis (IPA), reveals five themes and 21 sub-themes. All participants report a deleterious effect of low vision on their daily lives, which impacts mobility, careers, emotional health, and sense of independence. Altered sense of identity accompanied changes to familial and vocational roles, secondary to changes in visual function. Positive and negative changes to self-concept were identified. While acquired sight loss is challenging, participants engage internal and external resources to build meaningful lives. Results from the study will inform practice for health care professionals working with adults who are partially sighted. Notably, a framework focused on meaning making was identified for psychotherapists and spiritual care providers working with adults with acquired vision loss.