insights from the community

We would like to express our gratitude to the all CDG patient organizations and professionals who actively partnered with us in conducting this community-centered research led by the CDG & Allies \u2013 Patient Advocacy and International Research Network. We would also like to acknowledge the support of MetaBERN and FCDGC, as well as other CDG patient organizations worldwide, namely CDG Care, CDG Mexico, and Sindrome CDG, for disseminating the questionnaire of this study to various stakeholders of interest. Publisher Copyright: © The Author(s) 2024.