Caregivers' Perceptions of Older Adults' Autonomy During the Transition into Long-Term Care (LTC)

This Capstone project aimed to explore caregivers' perceptions of older adults' autonomy during the transition into long-term care (LTC). A non-probability purposive sampling method was used, with data gathered through an anonymous online survey hosted on Microsoft Forms. The survey, which consisted of 12 questions, was designed to capture caregivers' views on the autonomy of older adults, especially in light of cognitive and physical impairments. A total of 90 respondents participated, providing insights into the barriers that affect decision-making and independence for older adults during this transition. The findings revealed that cognitive issues, such as dementia, and physical limitations significantly hindered autonomy, with caregivers reporting that many older adults had limited input in decisions regarding LTC facilities, daily activities, and personal belongings. Emotional and mental health factors were also identified as significant challenges. Recommendations from caregivers emphasized the importance of including older adults in all decision-making stages, improving communication between families and LTC staff, and addressing emotional and structural barriers through better funding, policies, and support services. This study underscores the need for more research into caregiver perspectives, especially focusing on specific conditions like dementia, and calls for improved policy and practice to support the autonomy of older adults transitioning into LTC.