Family Members’ Perceptions of Older Adults’ Autonomy in Transitioning into Long-Term Care

This research examined family members' perceptions of older adults' autonomy during the transition into long-term care (LTC), a critical and emotionally charged life event. Guided by the research question, "How did family members perceive the autonomy of older adults transitioning into long-term care?", the study employed a qualitative approach to explore the interplay of emotional, relational, and systemic factors that influenced this process. Data collected through interviews with 7 family caregivers revealed key themes, including Autonomy through Family Support and Trust, Emotional Well-Being through Autonomy, Internal and External Factors Affecting Autonomy, Family Involvement in Maintaining Connection, and the Need for Improved Staff Training and Communication. The participants' experiences revealed a shared understanding of the importance of autonomy, trust, and family support in the transition to LTC. Themes of emotional well-being, personalized care, communication, and staff training underscored the necessity of a holistic approach to elder care. By emphasizing trust and active family involvement, families and LTC facilities worked together to support older adults’ sense of autonomy and well-being during these challenging transitions. This study contributed to the literature on caregiving and LTC transitions by offering actionable insights to enhance the dignity and quality of life of older adults and their families.