Promoting concepts for innovative participant and researcher engagement strategies across Europe

This document describes the current landscape for strategies engaging participants and incentivizing researchers in research infrastructures (RIs) related to the sharing and using of data. Following a general introduction, the document describes findings from a literature review for the current status of stakeholder engagement of three distinct groups particularly relevant for large medical cohorts: research participants, researchers and cohort managers. The report ultimately contrasts the findings of the literature review with the combined knowledge and experiences of the authors and concludes with recommendations on engagement and incentive practices for research infrastructures.