Caring for Pennsylvanians with Dementia and Related Disorders: An Analysis of Needs and Capacity in Rural Areas, 2024 to 2034

This research project examines important questions regarding the potential demand for care for individuals living with Alzheimer’s disease or a related disorder (ADRD) in rural Pennsylvania. By 2040, this study projects there will be approximately 133,000 more Pennsylvanians diagnosed with Alzheimer’s, as the size of the population age 65 and older increases by over 23%. In most rural counties, the proportion of the population with Alzheimer’s will exceed the overall state rate. Based on trends in data, the Commonwealth’s capacity to care for individuals with dementia-related disorders in facilities is limited. A significant amount of care is provided to persons in their homes, and that need will grow. Interviews and surveys with professionals and care workers confirm ongoing challenges in providing adequate levels of staffing and training to deliver the home care for which patients are eligible. Policy considerations focus on additional supports to address the burdens facing family caregivers and the inadequate supply of paid caregivers.