REVIVAL: Digital PREMs Data Collection from Cancer Survivors

Background: Cancer survivors often face long-term physical and psychosocial challenges post-treatment. Patient Reported Experience Measures (PREMs) are critical for understanding their perspectives and improving healthcare quality. However, no standardized tool currently exists for collecting these PREMs in Switzerland. Objectives: This study aimed to develop and test a digital application for collecting PREMs from cancer survivors to identify areas for improving aftercare. Methods: A web-application implementing the Cancer Patient Experiences Questionnaire (SCAPE-CH) using HL7 FHIR was developed, and usability was assessed using the System Usability Scale (SUS). Cancer survivors were recruited via social media to provide PREMs using the tool. Results: Data from 77 cancer survivors highlighted key areas for improvement, including communication between providers, information on long-term side effects and knowledge transfer between caregivers and doctors. SUS scores indicated good usability of the application. Conclusion: The digital PREMs tool effectively captured valuable insights, identifying critical areas for enhancing aftercare. Future work will focus on recruiting more patients to get representative data and integrating findings into broader healthcare strategies for cancer survivors.