Additional file 1 of Characteristics of patients with neurofibromatosis and patient and caregiver perspectives on the impact of the disease and its clinical management in Spain and Portugal

Supplementary Material 1: Table S1. Relatives with NF of Spanish participants. Table S2. Patients’ emotions and feelings concerning NF. Table S3. Work and educational impact of neurofibromatosis on Spanish and Portuguese participants. Table S4. Caregivers'socio-demographic characteristics. Table S5. Impact of NF on caregivers. Table S6. Caregivers’ work impairment concerning NF. Table S7. Frequency of medical visits. Table S8. Clinical management of NF. Figure S1. Medical specialities involved in the diagnosis of Spanish patients with NF1 (A), NF2-related (B) and non-NF2 related SWN (C). NF: neurofibromatosis; SWN: schwannomatosis. Figure S2. Medical specialities involved during the follow-up of Spanish patients with NF1 (A), NF2-related (B) and non-NF2 related SWN (C). NF: neurofibromatosis; SWN: schwannomatosis. Figure S3. Medical specialities involved in diagnosing Portuguese patients with NF1 (A) and NF2-related SWN (B). NF: neurofibromatosis; SWN: schwannomatosis. Figure S4. Medical specialities involved during the follow-up of Portuguese patients with NF1 (A) and NF2-related SWN (B). NF: neurofibromatosis; SWN: schwannomatosis. Figure S5. The frequency (%) with which Spanish (A) and Portuguese (B) participants have identified different issues related to the management of NF.