A FAIR intensive longitudinal data archive on prolonged grief in daily life

<b>Introduction:</b> The majority of grief research has assessed Prolonged Grief (PG) symptoms using cross-sectional surveys, which are limited in capturing within-person changes in daily grief reactions. These dynamic PG reactions can be more effectively assessed using Experience Sampling Methodology (ESM). Accordingly, this data note presents a Findable, Accessible, Interoperable, and Reusable (FAIR) archive comprising three existing ESM projects investigating PG reactions in daily life. <b>Methods:</b> Participants in this archive completed three data collection phases: baseline measures (including sociodemographic and loss characteristics, and psychopathology measures), a 14-day ESM phase (rating PG reactions and contextual factors up to five times daily), and follow-up psychopathology assessments. The participants provided explicit digital consent for the use and reuse of their data in scientific research. <b>Results:</b> In total, 315 people are included in this archive, with a total of 22,050 ESM-measurement points. The majority of the participants were middle-aged, identified as women, and had completed higher education. Almost half of the sample (48.73%) experienced the loss of a partner or child, the majority of these losses were due to natural causes (70.06%), and happened less than a year ago (59.24%). The data are stored in a trusted repository. <b>Discussion:</b> This archive demonstrates that it is feasible to develop a FAIR archive including existing data on PG reactions in daily life. Given the resource-intensive nature and richness of these data, we encourage researchers to reuse and/or share ESM-data through this archive, helping to deepen our understanding of grief in natural settings. This FAIR archive includes experience sampling data on prolonged grief.It includes data from 315 bereaved people and 22,050 measurement points.This reusable resource helps to advance our understanding of grief in daily life. This FAIR archive includes experience sampling data on prolonged grief. It includes data from 315 bereaved people and 22,050 measurement points. This reusable resource helps to advance our understanding of grief in daily life.

Publication Details

Journal
Figshare
Published
2025-01-01
DOI
https://doi.org/10.6084/m9.figshare.29597244.v1
Primary Topic
Advanced Electron Microscopy Techniques and Applications
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article
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article

A FAIR intensive longitudinal data archive on prolonged grief in daily life

Figshare
Advanced Electron Microscopy Techniques and Applications
article

A FAIR intensive longitudinal data archive on prolonged grief in daily life

article en

Abstract

<b>Introduction:</b> The majority of grief research has assessed Prolonged Grief (PG) symptoms using cross-sectional surveys, which are limited in capturing within-person changes in daily grief reactions. These dynamic PG reactions can be more effectively assessed using Experience Sampling Methodology (ESM). Accordingly, this data note presents a Findable, Accessible, Interoperable, and Reusable (FAIR) archive comprising three existing ESM projects investigating PG reactions in daily life. <b>Methods:</b> Participants in this archive completed three data collection phases: baseline measures (including sociodemographic and loss characteristics, and psychopathology measures), a 14-day ESM phase (rating PG reactions and contextual factors up to five times daily), and follow-up psychopathology assessments. The participants provided explicit digital consent for the use and reuse of their data in scientific research. <b>Results:</b> In total, 315 people are included in this archive, with a total of 22,050 ESM-measurement points. The majority of the participants were middle-aged, identified as women, and had completed higher education. Almost half of the sample (48.73%) experienced the loss of a partner or child, the majority of these losses were due to natural causes (70.06%), and happened less than a year ago (59.24%). The data are stored in a trusted repository. <b>Discussion:</b> This archive demonstrates that it is feasible to develop a FAIR archive including existing data on PG reactions in daily life. Given the resource-intensive nature and richness of these data, we encourage researchers to reuse and/or share ESM-data through this archive, helping to deepen our understanding of grief in natural settings. This FAIR archive includes experience sampling data on prolonged grief.It includes data from 315 bereaved people and 22,050 measurement points.This reusable resource helps to advance our understanding of grief in daily life. This FAIR archive includes experience sampling data on prolonged grief. It includes data from 315 bereaved people and 22,050 measurement points. This reusable resource helps to advance our understanding of grief in daily life.

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Advanced Electron Microscopy Techniques and Applications
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A FAIR intensive longitudinal data archive on prolonged grief in daily life · Figshare (2025) | TGRS Research Map | TGRS