Patient-Centered Research: Driving Drug Discovery through Open Science

Inspired by the promise of open science, Linda Lafontaine, a patient with the rare neurological disorder Hereditary Spastic Paraplesia (HSP), decided to donate data and biospecimens to Clinical, Biospecimen, Imaging, and Genetic (C-BIG) Repository, The Neuro's open science repository. While a powerful choice in itself, Linda went further and rallied the HSP community to do the same, creating a crucial cohort within C-BIG that will enable further HSP research and will help lead to further treatments. She will take the stage to tell us her story of how patients can be a driving force in enabling and accelerating research.