Conscience November 2024 Policy Brief - National strategy for Drugs for Rare Disease Agreement

Agreement between Canada and Newfoundland on Rare Diseases On November 15, 2024, the governments of Canada and of Newfoundland signed the National strategy for Drugs for Rare Disease Agreement (DRD) to support enhanced access to early diagnosis, screening for rare diseases, and improved access to existing and new drugs for rare diseases. This policy brief explains the unmet needs of rare disease patients and how this is just the first part of Canada's longer term strategy to invest in discovering new medicines for rare diseases.