Feasibility and acceptability of engaging care partners of persons living with dementia with electronic outreach for deprescribing.

Background And Objectives Care partners are critical for making treatment decisions in persons living with dementia. However, identifying them is challenging, hindering the broader use of interventions, such as those using digital technologies. We aimed to (i) assess the feasibility of identifying and contacting care partners using electronic health record (EHR) systems, and (ii) elicit their perspectives on electronic interventions for deprescribing.Research Design And Methods We systematically identified care partners of persons living with dementia ≥65 years of age via structured EHR data in a large healthcare system. Eligible care partners were contacted by patient portal (if they were an established proxy), mail, and phone to complete a survey.Results Of 4,138 eligible persons living with dementia identified, 1,084 (26%) had a care partner name recorded in the EHR. Out of 259 (6%) with sufficient care partner contact information for outreach, 74 (29%) completed the survey. Among care partners, 62 (84%) reported being confident in managing dementia medications, 59 (80%) were willing to stop ≥1 medications, and 43 (58%) were very/extremely interested in using digital tools for decision-making.Discussion And Implications Despite the low percentage of care partners with sufficient contact information, reach rates were high for contacted care partners, suggesting feasibility for pragmatic system-level interventions. Most care partners showed great interest in using digital health tools for decision-making and managing medications. Therefore, electronic tools could help with identifying care partners and engaging them. However, scaling up interventions requires better care partner documentation or extracting information from free text.

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Publication Details

Journal
Open Access CRIS of the University of Bern
Published
2025-02-27
DOI
https://doi.org/10.48620/85624
Primary Topic
Electronic Health Records Systems
Type
article
Field-Weighted Citation Impact
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article

Feasibility and acceptability of engaging care partners of persons living with dementia with electronic outreach for deprescribing.

Open Access CRIS of the University of Bern
Electronic Health Records Systems
article

Feasibility and acceptability of engaging care partners of persons living with dementia with electronic outreach for deprescribing.

article en

Abstract

Background And Objectives Care partners are critical for making treatment decisions in persons living with dementia. However, identifying them is challenging, hindering the broader use of interventions, such as those using digital technologies. We aimed to (i) assess the feasibility of identifying and contacting care partners using electronic health record (EHR) systems, and (ii) elicit their perspectives on electronic interventions for deprescribing.Research Design And Methods We systematically identified care partners of persons living with dementia ≥65 years of age via structured EHR data in a large healthcare system. Eligible care partners were contacted by patient portal (if they were an established proxy), mail, and phone to complete a survey.Results Of 4,138 eligible persons living with dementia identified, 1,084 (26%) had a care partner name recorded in the EHR. Out of 259 (6%) with sufficient care partner contact information for outreach, 74 (29%) completed the survey. Among care partners, 62 (84%) reported being confident in managing dementia medications, 59 (80%) were willing to stop ≥1 medications, and 43 (58%) were very/extremely interested in using digital tools for decision-making.Discussion And Implications Despite the low percentage of care partners with sufficient contact information, reach rates were high for contacted care partners, suggesting feasibility for pragmatic system-level interventions. Most care partners showed great interest in using digital health tools for decision-making and managing medications. Therefore, electronic tools could help with identifying care partners and engaging them. However, scaling up interventions requires better care partner documentation or extracting information from free text.

Open Access CRIS of the University of Bern
Primary Health Care (QA)
Peace, Justice and strong institutions
Openalex Percentile: Top 48%
Electronic Health Records Systems
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Feasibility and acceptability of engaging care partners of persons living with dementia with electronic outreach for deprescribing. · Open Access CRIS of the University of Bern (2025) | TGRS Research Map | TGRS