Housing needs for people with multiple sclerosis: a rapid review

The impact of Multiple Sclerosis (MS) on mobility and other functions varies considerably and the trajectory of the disease is unpredictable. People often need timely funding for home modifications, with some needing specialist disability housing and support. This rapid review examined existing literature on the housing needs of people with MS. A representative reference group guided our process. Concentrating on the home environment, we systematically searched peer-reviewed literature through three databases and grey literature using a focused web-based process. The inclusion of 19 peer-reviewed articles and 13 grey literature documents revealed the need for accessible housing, affordable in-home assistive technology, and proximity to the community. A lack of timely funding was a primary barrier to independence in the home, resulting in calls for financial aid that is responsive to the progressive nature of MS. People with MS need comprehensive support, including timely access to information, affordable and accessible housing, and funding for necessary home modifications. These resources are crucial to promote independence at home, reduce hospitalisations, and prevent early admission to residential aged care. Further research is needed to capture the unique barriers people with MS face in their local context as a precursor to developing participant-led recommendations. Improved availability of housing built to accessibility and usability design standards is required.Equitable, responsive funding should be available to meet the progressive needs of people with Multiple Sclerosis.Expert coordination and collaboration across sectors are necessary for sustainable housing solutions. Improved availability of housing built to accessibility and usability design standards is required. Equitable, responsive funding should be available to meet the progressive needs of people with Multiple Sclerosis. Expert coordination and collaboration across sectors are necessary for sustainable housing solutions.