D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse

This deliverable formulates ethical recommendations for a trustworthy framework for genomic data reuse in oncology based on the perspectives of patients, citizens, and Can.Heal professionals. It highlights areas where the values of the general public and professionals align, yet also where they might differ, indicating ethical points of discussion to be considered in the EU Cancer and Health Genomics Platform. The recommendations are addressed to any expert in oncogenomics, as well as EU and national health policymakers.

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Publication Details

Journal
Zenodo (CERN European Organization for Nuclear Research)
Published
2024-11-14
DOI
https://doi.org/10.5281/zenodo.14720403
Primary Topic
BRCA gene mutations in cancer
Type
article
Field-Weighted Citation Impact
0.00
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article

D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse

Zenodo (CERN European Organization for Nuclear Research)
BRCA gene mutations in cancer
article

D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse

article en

Abstract

This deliverable formulates ethical recommendations for a trustworthy framework for genomic data reuse in oncology based on the perspectives of patients, citizens, and Can.Heal professionals. It highlights areas where the values of the general public and professionals align, yet also where they might differ, indicating ethical points of discussion to be considered in the EU Cancer and Health Genomics Platform. The recommendations are addressed to any expert in oncogenomics, as well as EU and national health policymakers.

Zenodo (CERN European Organization for Nuclear Research)
Sciensano (Belgium) (BE)
Partnerships for the goals
Openalex Percentile: Top 67%
BRCA gene mutations in cancer
DOIOpen Access PDFOpenAlex
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D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse · Zenodo (CERN European Organization for Nuclear Research) (2024) | TGRS Research Map | TGRS