Establishing a National Framework for Advanced Health Analytics Infrastructure

Introduction: The Australian Research Data Commons (ARDC) has initiated the People Research Data Commons (RDC), a digital research infrastructure program aimed at enhancing digital health research and translation. ARDC collaborated with the Australian Data Science Network (ADSN) to evaluate the current state of digital health infrastructure in the health sector, focusing on computing resources, data and analytics methods, data accessibility, as well as the socio-technical elements. The primary goal is to identify the most critical national research infrastructure (NRI) components needed to support advanced health data analytics of health data and develop an Advanced Analytics Infrastructure Implementation PlanSpecification. Methods: A mixed-methods approach was used, including surveys, focus groups, and environmental reviews. A questionnaire was distributed to academics, government officials, and industry representatives to gather comprehensive insights. Additionally, focus groups facilitated in-depth discussions, and an environmental review provided contextual understanding. Data from these methods were systematically analysed to develop the framework. Results: These combined findings are being synthesised into a framework to serve as a specification for future ARDC co-investment projects. The framework aims to: a) Serve as a template for prioritising selecting ARDC partnership initiatives; b) Establish rapport with the research community, promoting the program's philosophy; c) Include NRI components, essential for supporting health research and translation; d) Integrate ARDC and other national infrastructure assets where applicable. Conclusion: Our methodological framework and findings underscore the importance of strategic NRI to support advanced health data analytics, ensuring that the ARDC's initiatives align with the needs and priorities of the research community.

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Publication Details

Journal
Zenodo (CERN European Organization for Nuclear Research)
Published
2024-10-30
DOI
https://doi.org/10.5281/zenodo.15293394
Primary Topic
Electronic Health Records Systems
Type
article
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Establishing a National Framework for Advanced Health Analytics Infrastructure

Zenodo (CERN European Organization for Nuclear Research)
Electronic Health Records Systems
article

Establishing a National Framework for Advanced Health Analytics Infrastructure

article en

Abstract

Introduction: The Australian Research Data Commons (ARDC) has initiated the People Research Data Commons (RDC), a digital research infrastructure program aimed at enhancing digital health research and translation. ARDC collaborated with the Australian Data Science Network (ADSN) to evaluate the current state of digital health infrastructure in the health sector, focusing on computing resources, data and analytics methods, data accessibility, as well as the socio-technical elements. The primary goal is to identify the most critical national research infrastructure (NRI) components needed to support advanced health data analytics of health data and develop an Advanced Analytics Infrastructure Implementation PlanSpecification. Methods: A mixed-methods approach was used, including surveys, focus groups, and environmental reviews. A questionnaire was distributed to academics, government officials, and industry representatives to gather comprehensive insights. Additionally, focus groups facilitated in-depth discussions, and an environmental review provided contextual understanding. Data from these methods were systematically analysed to develop the framework. Results: These combined findings are being synthesised into a framework to serve as a specification for future ARDC co-investment projects. The framework aims to: a) Serve as a template for prioritising selecting ARDC partnership initiatives; b) Establish rapport with the research community, promoting the program's philosophy; c) Include NRI components, essential for supporting health research and translation; d) Integrate ARDC and other national infrastructure assets where applicable. Conclusion: Our methodological framework and findings underscore the importance of strategic NRI to support advanced health data analytics, ensuring that the ARDC's initiatives align with the needs and priorities of the research community.

Zenodo (CERN European Organization for Nuclear Research)
Intersect (AU), Intersect ENT (United States) (US)
Industry, innovation and infrastructure
Openalex Percentile: Top 52%
Electronic Health Records Systems
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Establishing a National Framework for Advanced Health Analytics Infrastructure · Zenodo (CERN European Organization for Nuclear Research) (2024) | TGRS Research Map | TGRS