Enhancing Diversity and Quality in Health Data

This paper addresses the long-standing disparities in health outcomes and access to healthcare experienced by ethnic minority groups in the UK. It highlights the challenges posed by the inconsistent collection and quality of ethnicity data, which became particularly evident during the COVID-19 pandemic. The paper presents key findings from the UK Health Data Research Alliance's Special Interest Group on Ethnicity Data Coding Standards, formed to address concerns about poor data quality. It offers recommendations to improve the consistency, transparency, and standardisation of ethnicity data collection across health and social care. The goal is to enhance data accuracy and completeness to better understand and address ethnic inequalities in healthcare.

Institutions

Publication Details

Journal
Zenodo (CERN European Organization for Nuclear Research)
Published
2024-10-04
DOI
https://doi.org/10.5281/zenodo.13890529
Primary Topic
Medical Coding and Health Information
Type
article
Field-Weighted Citation Impact
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article

Enhancing Diversity and Quality in Health Data

Zenodo (CERN European Organization for Nuclear Research)
Medical Coding and Health Information
article

Enhancing Diversity and Quality in Health Data

article en

Abstract

This paper addresses the long-standing disparities in health outcomes and access to healthcare experienced by ethnic minority groups in the UK. It highlights the challenges posed by the inconsistent collection and quality of ethnicity data, which became particularly evident during the COVID-19 pandemic. The paper presents key findings from the UK Health Data Research Alliance's Special Interest Group on Ethnicity Data Coding Standards, formed to address concerns about poor data quality. It offers recommendations to improve the consistency, transparency, and standardisation of ethnicity data collection across health and social care. The goal is to enhance data accuracy and completeness to better understand and address ethnic inequalities in healthcare.

Zenodo (CERN European Organization for Nuclear Research)
University Hospitals Birmingham NHS Foundation Trust (GB), Office for National Statistics (GB), University of Leicester (GB), King's College London (GB), University of Cambridge (GB), Nuffield Orthopaedic Centre (GB), British Heart Foundation (GB), National Institute for Health and Care Research (GB), Swansea University (GB), University of Oxford (GB), British Heart Foundation Centre for Cardiovascular Science (GB), Nuffield Health (GB), Chelsea and Westminster Hospital (GB), Health Data Research UK (GB), NIHR Leicester Biomedical Research Centre (GB), University of Southampton (GB), Imperial College London (GB), University of Birmingham (GB), National Patient Safety Foundation (US), University of Edinburgh (GB)
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Openalex Percentile: Top 52%
Medical Coding and Health Information
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