The experience of caregivers of children with intestinal failure managing a central venous catheter in the home

Background: Children with intestinal failure (IF) have significant long-term medical needs that require continual complex procedures the family caregiver provides in the home. This care contributes to a high burden of care, leading to increased stress, anxiety, and depression. Understanding the family caregiver experiences for the child of IF is crucial for identifying and developing effective support programs and resources.