Exploring The Experience of People with Cystic Fibrosis and Their Partners on the Journey Towards Parenthood and its Impact on Psychological Well-Being.

This qualitative study will explore the experiences of PwCF and their partners as they navigate the journey toward parenthood in the context of evolving treatment options, particularly CFTR modulator therapies. It aims to understand how couples make decisions, cope with challenges, and experience potential shifts in identity, psychological well-being, and relationships. The study uses reflexive thematic analysis of individual interviews to examine perceptions of support, barriers, and reproductive justice, ultimately providing recommendations for better care and guidance for PwCF pursuing parenthood.

Publication Details

Journal
OSF Preprints (OSF Preprints)
Published
2025-01-01
DOI
https://doi.org/10.17605/osf.io/7b2d4
Primary Topic
Cystic Fibrosis Research Advances
Type
article
Field-Weighted Citation Impact
0.00
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article

Exploring The Experience of People with Cystic Fibrosis and Their Partners on the Journey Towards Parenthood and its Impact on Psychological Well-Being.

OSF Preprints (OSF Preprints)
Cystic Fibrosis Research Advances
article

Exploring The Experience of People with Cystic Fibrosis and Their Partners on the Journey Towards Parenthood and its Impact on Psychological Well-Being.

article en

Abstract

This qualitative study will explore the experiences of PwCF and their partners as they navigate the journey toward parenthood in the context of evolving treatment options, particularly CFTR modulator therapies. It aims to understand how couples make decisions, cope with challenges, and experience potential shifts in identity, psychological well-being, and relationships. The study uses reflexive thematic analysis of individual interviews to examine perceptions of support, barriers, and reproductive justice, ultimately providing recommendations for better care and guidance for PwCF pursuing parenthood.

OSF Preprints (OSF Preprints)
Gender equality
Openalex Percentile: Top 40%
Cystic Fibrosis Research Advances
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Exploring The Experience of People with Cystic Fibrosis and Their Partners on the Journey Towards Parenthood and its Impact on Psychological Well-Being. · OSF Preprints (OSF Preprints) (2025) | TGRS Research Map | TGRS